I am 1 in 10. I have a condition known as Polycystic Ovary Syndrome, or PCOS. For many years, this was an unheard of & unspoken illness. While the internet can sometimes be the bane of my existence, it’s provided a lot of insight and comfort recently. It’s so helpful and awe-inspiring to see so many others in the same struggle. It’s had a terrible impact on the last 15 years of my life but before I get into my story, let’s shed some light on what PCOS actually is.
PCOS is a condition that affects a woman’s hormone levels. 1 out of 10 women have this illness. Despite this ratio, experts believe that more than half of women with PCOS don’t even realize they have it. Women with PCOS have slightly higher levels of testosterone and androgen in the body than normal for the average woman. Despite the name, you may not necessarily have ovarian cysts. Symptoms can sometimes present themselves at the onset of a girl’s period; however, many won’t notice anything until they’ve gained a significant amount of weight or have trouble getting pregnant. In some cases, women don’t find out they have PCOS until after they have their first child. The most common symptoms are irregular periods, heavy bleeding, excess hair growth, acne, weight gain, male-pattern baldness, darkening of the skin, fatigue, and headaches. PCOS is also linked with chronic inflammation, which can leave you feeling achy, fatigued, and it contributes to weight gain.
Along with the myriad of symptoms, one of the biggest issues with PCOS is how it affects your ability to become and/or stay pregnant. In fact, it is the leading cause of female infertility. Between 70 and 80 percent of women with PCOS have fertility problems. This condition can also increase the risk of complication during pregnancy. Women with PCOS are twice as likely as women without the condition to deliver their baby prematurely. They’re also at greater risk for miscarriage, high blood pressure, and gestational diabetes. However, hope is not lost. Having PCOS does not mean you will be incapable of becoming pregnant naturally; it just may take longer than others. Losing weight and lowering blood sugar levels can improve your odds of having a healthy pregnancy. Women with PCOS can also get pregnant using fertility treatments that improve ovulation.
There is no cure for PCOS; however, there are several medications and treatments your doctor may suggest. Medications such as birth control & metformin are often prescribed to reduce symptoms and/or regulate your period. Fertility medicines may also be recommended for those trying to become pregnant. Your doctor may require regular tests and follow up visits to be sure that the treatment/medication is working properly and to adjust if necessary. Some doctors may also recommend supplements, including berberine, folate, B12, vitamin D, and inositol. Regular exercise, healthy eating, and weight control are also key treatments for PCOS. Unfortunately, it can be more challenging to lose weight and to maintain weight loss with PCOS. Some recommended foods to avoid are foods that are high in refined carbohydrates, such as white bread and muffins, sugary snacks and drinks, and inflammatory foods, such as processed and red meats. Many women with PCOS often have higher than normal insulin levels. Doctors advise that just a slight weight reduction and increase of exercise can help improve insulin sensitivity.
If you or someone you know is experiencing any of these symptoms, seek help from your OB/GYN as soon as possible. The sooner you get help, the sooner you will be on the path to feeling better!
I am 1 in 10. Everyone has a story…this is mine. After suffering every single month throughout high school and falling very sick during my first semester of college, I sought help from a gynecologist. She diagnosed me soon after with PCOS at the age of 18. From then on, I was put on various birth control pills (and even that godawful…and pointless…patch) to try and regulate things. It has been mostly under control, except for my weight fluctuating like crazy, my face randomly breaking out like a teenager, and my period doing whatever it damn well pleases.
I do not have kids yet and am otherwise convinced that I won’t be able to have them. I have suffered two miscarriages – one in my very early 20s and another one recently. For my entire life, the only thing I ever wanted to be was a mom…but that doesn’t seem to be in the cards for me. Doctors aren’t quick to confirm infertility – seems they’d rather you suffer the agony of losing babies or being unable to conceive altogether before they step in. Nonetheless, that’s the conclusion I’ve come to. I know there are plenty of options nowadays but the heartache of miscarriages combined with my age make it seem all the more daunting and unrealistic.
I’ve recently come off birth control and I’m hoping to not go back on it. I’ve been on it for 15 years, barring a few months here and there where I was giving my body a break or where I didn’t have insurance. While it is helpful for many of my symptoms, it tends to stop my period and cause a bunch of other issues…which I don’t need. I plan on taking it day by day to see how my body reacts and if all goes well, I won’t go back on the pills. The goal, as always, is to feel good & live a better, healthier life.
If you or someone you know is struggling, please know you are NOT alone. Feel free to contact me anytime through social media or via email – I’m always available to lend an understand ear.
Stay strong & stay in the fight