Nearly 7 months have passed and it still doesn’t feel real. Today, April 29, would’ve been your birthday. Instead of being in a hospital holding you in my arms, I sit here with tears in my eyes and a heaviness in my heart. I’ll never get to know who you would’ve turned out to be. I never got to see a sonogram picture or hear a heartbeat. I had many vivid dreams that you were a girl and while I never got actual proof of that, I know you would’ve been the most adorable baby anyone had ever seen. I hoped that you’d have your daddy’s blue eyes & light hair to go with the same outgoing, fun personality that we both have. I may not have had confirmation of your gender but I had a beautiful name in mind, should you have been the little girl in my dreams. You weren’t around long, but you changed your mommy & daddy’s life, as they knew it, forever. I may not know much for sure…but I do know that you were loved more than you can imagine.
Today marks the end of National Infertility Week. I am 1 in 4. This is by far the hardest blog I’ve ever written. I’ve made the attempt to type everything out & share this story several times over the last few months but I just couldn’t bring myself to write finish it. However, I know how isolating this feels and if sharing my story can help even one person out there to know they aren’t alone…it’s worth the pain it takes to write. After all, with experience comes knowledge & knowledge should shared.
I don’t cry as much these days but I still feel a sadness & emptiness inside. It’s a heaviness that’s hard to describe. I don’t have as many “bad” days and that may be due, in part, to the face that I’ve also come to realize that God may have, in fact, “known better.” As the weeks and months went by, I continued to feel physical pain in my lower abdomen which got progressively worse. After seeking help from two different doctors and having numerous tests, they found a polyp in my uterus which had to be removed via hysteroscopy. While there isn’t any way to know for sure, my doctor believes this could have led to my loss. I try to take comfort in knowing that my little one could’ve been harmed had it not happened. I also know that had it not happened I wouldn’t have investigated…and gotten answers to my on-going health issues.
Let’s back up. Throughout high school, I suffered tremendously every month. I had pain so bad that I would be doubled over in the nurse’s office, often leading to my going home. After high school, I had an episode of pain so bad that the college I was at in upstate NY thought I had appendicitis and rushed me to the ER. It wasn’t appendicitis and I was sent home. A few days later I went to a gynecologist who found cysts and after several tests, diagnosed me with PCOS. I was put on birth control and my symptoms were pretty much under control thereafter.
This past summer, despite birth control and all logic…I got pregnant. I was really scared. Not about having the baby…but about carrying it. I suffered a miscarriage in my early 20s, while on the birth control patch (why was that a thing?!) and combined with my age and PCOS…I knew it was a recipe for a repeat. Still, I did what I could to take care of myself. The pee-stick tests were all coming back negative (aside from one that had a very slight pink line) and a very early sonogram didn’t show anything. Why didn’t I go for a blood test? I don’t know. I thought a sonogram would be better…just in case I wasn’t actually pregnant. I was wrong. I had severe morning sickness and an adversion to coffee (of all things). I was also starting to get a little pooch and my boobs…well, they came back to life in the most painful way. I should’ve had the blood test to get the confirmation and extra care that I probably needed. I won’t lie – that has weighed heaviest on me. I genuinely thought that I was doing the right thing but maybe had we had the full confirmation, I could’ve been under a doctor’s care sooner & prevented what happened. I know that’s ridiculous and that ultimately these things can’t be prevented. Still, when you go through this type of loss you have feelings of guilt & genuinely blame yourself. It takes a long time to come to grips that there was really nothing you could’ve done. Hell I still have days where I wonder if I could’ve done something different. That helpless feeling doesn’t make the situation any easier – it actually makes it worse. No one talks about that…but it’s real.
The reality of pregnancy was sinking in and I was getting really excited about this little one. Despite being so sick that I could barely eat or function normally, I knew it would be worth it in the end. Little did I know that the end..and my worst fear…would come just 8/9 weeks later. Early October came…and so did the bleeding. At first, it wasn’t a lot of blood so I didn’t think too much of it but within hours I was all but hemorrhaging. Knowing how the hospitals around me are..I waited it out a little. I figured if the bleeding slowed down, I’d be okay. The blood was extremely heavy, soaking through pad after pad. Still, I waited a little while. It didn’t totally slow down but within a few hours, it slowed enough to where I didn’t think that I needed to go. What I knew for sure was that it wasn’t a regular period by any means – especially when I saw the grayish mass. I knew what was happening. I was losing my baby.
A sonogram and blood test a couple of weeks later confirmed it. The weeks and months that followed were some of the hardest that I’ve ever had to go through. I put on my game face and went to work every single day but the minute I’d get in my car…I’d be inconsolable. Thankfully, I had a great support system/partner by my side through it all. I truly don’t know how I would have made it without him. The whole situation was hard on both of us, for very different reasons. The holidays, which came about a month later, were especially hard on me but once New Years came I made up my mind to not bring this sadness into 2018 and to give the guy…and myself…a break from it all.
Throughout this whole ordeal, I was experiencing dull to moderate pain in my lower abdomen. I didn’t think much of it, figuring this is what happens after a miscarriage sometimes. However, as the months went by, the pain got worse. I sought out a new doctor who, after 2 sonograms, told me I needed a hysteroscopy to remove a polyp in my uterus. Once removed, they would biopsy this polyp for cancer. That word completely shook me. We went ahead with the procedure and I was a nervous wreck. First I lose a baby…now a cancer scare. A couple of weeks later, I had another sonogram and follow up for my results. Thankfully, it wasn’t cancer. However, the pain persisted and while I do have cysts (common from my PCOS), they shouldn’t cause this much grief. My doctor sent me to another gynecologist who specializes in pain management, specifically that of pelvic pain & endometriosis. After a very thorough consultation and examination, she determined that I most likely have endometriosis. She even told me that my “appendix pain,” something that I’ve suffered with since the age of 18, was one of the most common and classic symptoms of a person with endo. She put me on a hormone treatment, which is essentially birth control but with progestin instead of estrogen. She also put me on a regimen of Aleve to manage my pain better. It’s her hope to prolong the surgery, or laparoscopy, as long as we can.
As far as the loss goes, I have been getting better everyday but now that the actual due date is here, I’m a mess all over again. Truth is, this shook me more than anything ever has. With every passing day and sharp pain that I feel, I worry that I may not be able to have babies at all. The doctors all feel otherwise, stating that getting pregnant is the hardest part and clearly I didn’t have that issue. However, I’m more concerned for my ability to carry the baby to term. There’s no way to even determine that…and it kills me. We’ve come so far in so many ways with medicine but we’re so behind in others. Women can suffer numerous losses and not have an explanation why…just because everything “looks good” or “shouldn’t be a problem.” It’s horrible.
Losing a baby at any stage of pregnancy is by far the hardest thing a woman has to face. What people don’t realize is that you form a bond with that baby immediately. Your body starts to change. You start making these plans and daydreaming about what your baby will look like & grow up to be. Then, in the blink of an eye, it’s over. Sometimes it feels like a bad dream that I can’t wake up from.
To anyone reading this, please know that you aren’t alone. Your feelings are valid – you aren’t crazy. Despite what you may think or feel…this really isn’t your fault. Most people, including your partner, can’t understand how this feels and while they may try to be supportive, it doesn’t make it better. Above all please remember, you don’t have to “get over it” until you are ready. Don’t let anyone tell you otherwise! The healing process differs for everyone and its no ones right to dictate how long that should take. Allow yourself time to be sad but don’t stop living. I have gone through the motions for months, living my life the way I always have. I know that one day things will feel normal again – and I look forward to that day for me…& for you.
Stay strong ❤
*In loving memory of my angel baby, ‘Baby R’, and all of the other angel babies watching over us in Heaven*